PLEASE DONATE TO HELP KHEJILEN- CrowdFunding

PLEASE DONATE TO HELP KHEJILEN

By : Kaleivani
Created on: 11 Feb, 2023
Verified
Rs 94,117 Raised

Hello, my son, Khejilen was born preterm at 34 weeks in a public hospital in Mauritius.  He stayed 1 and half month in the Neonatal ICU.  The doctor said there will be some development delay but when he reached his first birthday, there was no improvement in his development.  He can't sit, stand, hold his head and neither can he crawl or walk.  I kept asking doctors about this but they told me to be patient.  As a mother, I was very worried, so I took him to a private hospital where the doctor diagnosed him to be suffering from Cerebral Palsy . As a  treatment to this, the doctor advised that we start physio and we did.  But then, he started to have fits and he was admitted to do an EEG which showed that he is suffering from Generalized Epilepsy .  
An MRI was also performed which showed that he is suffering also from hydrocephaleus. But even after following his therapies i have not seen any major improvement in him. After a lot of research and taking advice from parents whose kid suffer the same issues as my son, i came to know about a treatment call stem cell therapy. 

Below is a breakdown of all the treatments he will need to do:


1, The treatment protocol involves a 14-day hospital stay during which time he will be extensively evaluated

clinically. This will be followed by a Bone Marrow Aspiration from which subsequently the mononuclear cells will be isolated. These are hemopoetic mononuclear cells which is injected intrathecally through a lumbar puncture and CSF catheter.


2, This will be followed by comprehensive rehabilitation program which includes physiotherapy, occupational, speech therapy, psychological counseling, genitourinary rehabilitation.

3, From second week onwards, Integrative Therapies will be customized as per the diagnosis and patient requirement. It will include the following: Ozone Therapy, HBOT, Deep Tissue Mobilization etc. and Specialty Consultations during the stay.

All of the above is costing us a lot of money. I am requesting you humbly for just a small donation from each one of you, so that my dear Khejilen can get the treatment he needs.

TO NOTE THAT THE TREATMENT IS NOT APPROVED IN MAURITIUS DUE TO SOME ETHICAL ISSUES. THAT IS WHY WE ARE NOT GETTING ANY HELP FROM THE GOVT. BUT AS A MOTHER I CAN'T SEE MY SON IN BED THROUGHOUT ALL HIS LIFE AND I CAN'T LISTEN TO DOCTORS WHO SAYS THAT MY SON WILL ALWAYS BE LIKE THIS BECAUSE I DON'T THINK THAT ANYONE OF US WOULD LIKE TO LIVE SUCH A LIFE. WE ALL HAVE THE RIGHT TO HAVE A LIFE WHERE WE CAN BE INDEPENDENT AT SOME POINT. I NEED YOUR HELP SO THAT I CAN GIVE MY SON THE LIFE THAT HE DESERVES TO LIVE.

I have attached his medical reports below for your perusal. The treatment will cost approximately Rs 800,000 and we have been able to gather Rs 50,000, we need your support to collect the difference of Rs 750,000.

Thank you so much for your support and prayers.

Kaleivani.

 

 

 

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Comments
  1. SB
    Get well soon

    Comment by

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  2. MR
    Get well soon

    Comment by

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  3. A
    Bon courage

    Comment by

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  4. DB
    Get well soon little one!

    Comment by

    Posted on

  5. LB
    Hope this will help

    Comment by

    Posted on

  6. YD
    From Montreal wishing you a good recovery

    Comment by

    Posted on

  7. AP
    Thinking about you in my prayers Khejilen for strength going through your treatment and a successful recovery .4659

    Comment by

    Posted on

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Description

Hello, my son, Khejilen was born preterm at 34 weeks in a public hospital in Mauritius.  He stayed 1 and half month in the Neonatal ICU.  The doctor said there will be some development delay but when he reached his first birthday, there was no improvement in his development.  He can't sit, stand, hold his head and neither can he crawl or walk.  I kept asking doctors about this but they told me to be patient.  As a mother, I was very worried, so I took him to a private hospital where the doctor diagnosed him to be suffering from Cerebral Palsy . As a  treatment to this, the doctor advised that we start physio and we did.  But then, he started to have fits and he was admitted to do an EEG which showed that he is suffering from Generalized Epilepsy .  
An MRI was also performed which showed that he is suffering also from hydrocephaleus. But even after following his therapies i have not seen any major improvement in him. After a lot of research and taking advice from parents whose kid suffer the same issues as my son, i came to know about a treatment call stem cell therapy. 

Below is a breakdown of all the treatments he will need to do:


1, The treatment protocol involves a 14-day hospital stay during which time he will be extensively evaluated

clinically. This will be followed by a Bone Marrow Aspiration from which subsequently the mononuclear cells will be isolated. These are hemopoetic mononuclear cells which is injected intrathecally through a lumbar puncture and CSF catheter.


2, This will be followed by comprehensive rehabilitation program which includes physiotherapy, occupational, speech therapy, psychological counseling, genitourinary rehabilitation.

3, From second week onwards, Integrative Therapies will be customized as per the diagnosis and patient requirement. It will include the following: Ozone Therapy, HBOT, Deep Tissue Mobilization etc. and Specialty Consultations during the stay.

All of the above is costing us a lot of money. I am requesting you humbly for just a small donation from each one of you, so that my dear Khejilen can get the treatment he needs.

TO NOTE THAT THE TREATMENT IS NOT APPROVED IN MAURITIUS DUE TO SOME ETHICAL ISSUES. THAT IS WHY WE ARE NOT GETTING ANY HELP FROM THE GOVT. BUT AS A MOTHER I CAN'T SEE MY SON IN BED THROUGHOUT ALL HIS LIFE AND I CAN'T LISTEN TO DOCTORS WHO SAYS THAT MY SON WILL ALWAYS BE LIKE THIS BECAUSE I DON'T THINK THAT ANYONE OF US WOULD LIKE TO LIVE SUCH A LIFE. WE ALL HAVE THE RIGHT TO HAVE A LIFE WHERE WE CAN BE INDEPENDENT AT SOME POINT. I NEED YOUR HELP SO THAT I CAN GIVE MY SON THE LIFE THAT HE DESERVES TO LIVE.

I have attached his medical reports below for your perusal. The treatment will cost approximately Rs 800,000 and we have been able to gather Rs 50,000, we need your support to collect the difference of Rs 750,000.

Thank you so much for your support and prayers.

Kaleivani.

 

 

 

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Comments

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Comments
  1. SB
    Get well soon

    Comment by

    Posted on

  2. MR
    Get well soon

    Comment by

    Posted on

  3. A
    Bon courage

    Comment by

    Posted on

  4. DB
    Get well soon little one!

    Comment by

    Posted on

  5. LB
    Hope this will help

    Comment by

    Posted on

  6. YD
    From Montreal wishing you a good recovery

    Comment by

    Posted on

  7. AP
    Thinking about you in my prayers Khejilen for strength going through your treatment and a successful recovery .4659

    Comment by

    Posted on